BRAVE Study

Tags: LCBRU Study Category

Details

BRAVE is a sub-study of the BRICCS Study, but with separate ethics approval for the recruitment of minors. It investigates families that have bicuspid aortic valves.

Status

Recruiting underway.

Contacts

Project Management

Radek Debiec

Consents

Recontact

?

Access Medical Records

?

IT

Recruitment Management

CiviCRM Module BRAVE

Data Warehouse

i2b2 Summary (Uses the same i2b2 project as the BRICCS Study)

Questionnaire

REDCap Summary (Questionnaire - V:\IT projects\REDCap\REDCap data dictionaries\Current\BRAVE)

Sample Management

OpenSpecimen Summary

Reporting

• BRICCS BRAVE Echo Report
• BRAVE Reporting CiviCRM to OpenSpecimen Consolidation
• BRAVE Reporting CiviCRM to REDCap Consolidation
• BRAVE Reporting Data Quality

Data Integrations

• DataIntegration BRAVE REDCap to BRAVE i2b2
• DataIntegration BRAVE REDCap External to BRAVE i2b2
• DataIntegration BRAVE CiviCRM to BRAVE i2b2
• DataIntegration BRAVE CiviCRM to BRAVE i2b2 - Delete Withdrawn
• DataIntegration BRAVE CiviCRM to BRAVE i2b2 - Delete Excluded
• DataIntegration BRICCS i2b2 to BRAVE i2b2

Tickets

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External Sites (All at discussion only stage)

In order of expected roll-out

• Northampton
• Kettering
• Nottingham
• Derby
• Lincoln
• Birmingham (in talks)

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