Planning page for the 'Health Data workshop and Third i2b2 European Academic User Group (AUG) meeting'

Proposed title

i2b2 and eHealth Opportunities: UK and International perspectives

Dates

5,6,7 October 2015

Venue

College Court, University of Leicester

Possible invitees

• HSCIC
• GEM
• The HeRCs (including CIPHER @ Swansea)
• The Farr Institute
• Ulli Prokosh, etc from Erlangen
• Christian Bauer, from Goettingen
• Riccardo Belazzi, from Pavia
• Donald Scobbie
• The Health Improvement Network (THIN)
• EBI and other European projects?
• IMI EMIF (Johann van der lay)
• IMI EHR4CR ?
• FP7 BioShaRE
• eTRIKS
• Genomics England Ltd (Tim Hubbard)
• The other BRUs and BRCs, including the Rare Disease TRC
• IBM
• UK Biobank
• Georges Pompidou Hospital, Paris, France
• Hospital of the Free University of Brussels, Belgium
• Inserm U936, Rennes, France
• Institute for Data Technology and Informatics (IDI), NTNU, Norway
• Institute for Molecular Medicine Finland (FIMM)
• Karolinska Institute, Sweden
• Landspitali University Hospital, Reykjavik, Iceland
• Medical University of Vienna
• National Consiglio del Research, Pisa, Italy
• University of Bordeaux Segalen, France
• University of Kiel, Germany
• University of Leipzig, Germany
• Vergen del Rocio University Hospital, Spain

• Johnson and Johnson (TransMART)
• GE Healthcare Clinical Data Services
• TriNetX
• Cerner and other EHR providers
• Aridhia

• Talk to Susanne Churchill about any other European sites using i2b2 that they are aware of

Possible agenda items

• Day one: Health Data for Research ( 5 x 60 or 90 min sessions? )
  • Welcome from NJS
  • Session 1. Using National Health Data For Research
    • care.data
    • CPRD
    • HSCIC
    • Genomics England
    • clinician's perspective (maybe Matt Bown)
    • patient's perspective
    • ethics and privacy
  • Session 2. Primary Care Data At Regional And Local Scale
    • GEM
    • Who else?????
  • Session 3. Hospital Data & Integration Bottlenecks
    • EHR options summary
    • OpenEHR
    • EMIF/Jerboa
    • EHR4CR
    • i2b2
  • Session 4. Software To Support Research
    • tranSMART
    • Leicester's experience (BRUs, BRISSkit, COPD-MAP)
    • BioShare/DataShield?
    • text processing (GATE)

MUST seek contributions from the HeRCs, FARR and other institutions

• Day two: European i2b2 Academic User Group meeting
  • Keynote from Zak or someone else from i2b2 / Partners Healthcare
  • Presentation from TriNetX
  • DISCUSSION TOPICS
    • Research (vs healthcare) data in i2b2
    • Omic scale data in i2b2
    • Environmental data in i2b2 (Riccardo ?)
    • Unstructured data / text processing in i2b2
    • Images and image metadata in i2b2
    • Temporal relationships in i2b2
    • Ontologies / ontology generators in i2b2
    • Data loading techniques
    • Collaboration and SHRINE networks

• Day three: BRISSkit Hack Day

Finances

Possible sponsor: TriNetX (David Legge)