Planning page for the 'Health Data workshop and Third i2b2 European Academic User Group (AUG) meeting'

Dates

5,6,7 October 2015

Venue

College Court, University of Leicester

Possible invitees

• HSCIC
• GEM
• The HeRCs (including CIPHER @ Swansea)
• The Farr Institute
• Ulli Prokosh, etc from Erlangen
• Christian Bauer, from Goettingen
• Riccardo Belazzi, from Pavia
• Donald Scobbie
• The Health Improvement Network (THIN)
• EBI and other European projects?
• IMI EMIF (Johann van der lay)
• IMI EHR4CR ?
• FP7 BioShaRE
• eTRIKS
• Genomics England Ltd (Tim Hubbard)
• The other BRUs and BRCs, including the Rare Disease TRC
• IBM
• UK Biobank
• Georges Pompidou Hospital, Paris, France
• Hospital of the Free University of Brussels, Belgium
• Inserm U936, Rennes, France
• Institute for Data Technology and Informatics (IDI), NTNU, Norway
• Institute for Molecular Medicine Finland (FIMM)
• Karolinska Institute, Sweden
• Landspitali University Hospital, Reykjavik, Iceland
• Medical University of Vienna
• National Consiglio del Research, Pisa, Italy
• University of Bordeaux Segalen, France
• University of Kiel, Germany
• University of Leipzig, Germany
• Vergen del Rocio University Hospital, Spain

• Johnson and Johnson (TransMART)
• GE Healthcare Clinical Data Services
• TriNetX
• Cerner and other EHR providers
• Aridhia

• Talk to Susanne Churchill about any other European sites using i2b2 that they are aware of

Possible agenda items

• Day one: Health Data for Research workshop ( 4 x 90 min sessions? )
  • Welcome from NJS
  • HSCIC presentation - using data at the national scale (inc care.data and CPRD) (inc a clinician's perspective, maybe from Matt Bown)
  • GEM presentation - using community acquired data at regional and local scale
  • Panel discussion on NHS data use in the HeRCs
  • Panel discussion on using different EHR systems (Cerner, obv, but others too) for research
  • Experiences of text processing (GATE?)
  • Software infrastructure to support research (BRISSkit, BioShare/DataShield, etc)
  • Consent, data privacy, ethical dimensions, patient involvement?

• Day two: European i2b2 Academic User Group meeting
  • Keynote from Zak or someone else from i2b2 / Partners Healthcare
  • Genomic data in i2b2 ?
  • Environmental data / exposomics ? Riccardo, or BRISSkit?
  • Unstructured data / text processing in i2b2 ?
  • Images and image metadata ?
  • Temporal relationships in data ?
  • Ontologies / ontology generators
  • Data loading techniques - BRISSkit? RB?
  • Collaboration and networks - SHRINE?
  • Presentation from TriNetX ?

• Day three: BRISSkit Hack Day

Finances

Possible sponsor: TriNetX (David Legge)