Bicuspid Aortic Valve Study

The Bicuspid Valve (BRAVE) study is being run by Radek Debiec.

The study is beginning as a study specific recruitment context for BRICCS, but will need a specific study protocol and separate ethics approval for the recruitment of minors.

Recruitment will involve family trios. This will require some changes to the REDCap questionnaire for BRICCS. Radek is reviewing the questionnaire and will advise on any questions that can be skipped, or additional questions required.

New Data Collection Instrument, triggered only for patients where recruitment context is 'study specific/bicuspid valve study'.

EXTRA QUESTIONS:

Case type? (bicuspid_case_type)
1, Proband
2, Index
Branching logic only to show this for study specific / bicuspid

Relationship: (bicuspid_relationship)
1, Offspring
2, Sibling
3, Parent
Branching logic only to show this for PROBAND cases

ID of INDEX case: (bicuspid_reference_id)

(how can we reference the BPt ID for the INDEX case? Search in CiviCRM or REDCap? CiviCRM is probably the best way to do this) - show this question for everyone, including INDEX cases.

CHECK: DO BRICCS patients all go into CiviCRM in real time? YES THEY DO.